Canadian Congenital Heart Alliance

Conference presentations

New posting: Edmonton ACHD patient "Heart to Heart" Conference, May 23, 2015

Canadian Congenital Heart Alliance: We're here for you! (Shelagh Ross, CCHA)

Ready, Set, Go! Making a smooth transition from pediatric to adult cardiac care (Gwen Rempel, RN)

Taking charge of your heart health: Becoming your own CEO (Pam Heggie, NAACH Clinic Nurse)

Closing holes, replacing valves: What's new in interventional cardiology? (Dr. Dylan Taylor)

Congenital heart surgery: How far have we come and where are we going? (Dr. Ivan Rebeyka)

Are you a Ferrari or a Fiat? Exercise and congenital heart disease (Dr. Isabelle Vonder Muhll)

Stressed out? Coping with a chronic heart condition (Dr. Jaleh Shahin)

Testing, testing 1-2-3. What tests tell about my heart (Dr. Tarun Sehgal)

What to expect when you're expecting: What congenital heart patients need to know about pregnancy, contraception, and becoming parents (Dr. Jonathan Windram) 


22nd International Symposium on Adult Congenital Heart Disease - Toronto, May 2012

Setting the stage: the top 10 challenges after saving lives

The top 10 challenges for adult CHD cardiologists - Gary Webb

The top 10 challenges in adult CHD: surgeon perspecitve - Glen Van Arsdell

The top 10 challenges after saving lives: for nurses and congenital cardiac care associates - Philip Moons

The top 10 challenges after saving lives - Barbara Mulder

The top 10 challenges after saving lives: an adult patient's persepctive - Shelagh Ross, CCHA president


Advanced care planning in Adult CHD: practical information

What are examples of quality death and dying? - Qunyu Li

How do we involve palliative care in the management of our patients? - James Downar

How can we communicate effectively about advanced care planning? - Lawrence Librach

Pregnancy in adult CHD: beyond the basics

What is the most appropriate peripartum obstetrical management of women with CHD? - Mathew Sermer

What is the best method of anticoagulation to use in pregnant women with mechanical valves? - Els Pieper

What should we tell women about late effects of pregnancy on the heart? - Sam Siu

Heart failure in adult CHD: beyond drugs

Exercise and heart failure - Tanya Holloway

Who lives and who dies: how do we assess risk" - Luke Burchill

VADs in adult CHD: the good, bad, and the ugly - Vivek Rao

Transplatation - the holy grail: who, when, and why not? - Heather Ross


The Fontan disease

Why is the Fontan circulation so special? - Marion McRae

The Fontan circulation - a systemic disease? - Gruschen Veldtman

Why does the Fontan circulation fail? - Andrew Redington

Should we convert all RA to PA Fontans? Barbara Deal


Applying new anti-arrythmic strategies to adult CHD - do they work? 

Arrythmia and hemodynamics: chicken or egg? - Louise Harris

How do we manage VT in tetralogy of Fallot? - Krishnakumar Nair & Eugene Downar

Anti-arrythmic surgery: what can I offer? - Christopher Calderone


Pulmonary arterial hypertension - tough questions

Epidemiology and natural history in PAH and adult CHD: do we know the story? - Ariane Marelli

ASD and PAH: to close or not to close? - Helmut Baumgartner

Vasodilator therapy in Eisenmenger patients: who, when, and what? - Alexander Opotowsky

Transplantation of Eisenmenger patients: who, when, and what? - John Granton


Tetralogy of Fallot Conference, Marseille, France – June 2013

Past current and optimal surgical management of tetralogy of Fallot

PDF icon Download Past-current-and-optimal-surgical-management-of-tetralogy.pdf (4.31 MB)

Evaluating quality of life after correction of tetralogy of Fallot

PDF icon Download Evaluating-quality-of-life-after-correction-of-ToF-Fallot-2013-Marseille-June-2013.pdf (1.67 MB)

SWITCH2 research program: self-management and well-being improvements by transitioning adolescents with chronic disorders in hospital and at home

Current social situation of an adult with repaired “tet”

PDF icon Download Current-societal-situation-of-an-adult-with-repairedpdf-1.pdf (1.46 MB)

CCHA presentation given at the tetralogy of Fallot conference, June 2013

PDF icon Download CCHA-June-2013_1.pdf (3.36 MB)

Toronto Adult Congenital Heart Patient Conferences


  • Staying active with adult congenital heart disease: Tanya Holloway, Exercise Physiologist

Download THolloway_Staying-Active_TCCCA-Patient-Conference-2010.pdf (85.54 KB)

  • Strategies for heart health: healthy eating

Download ACHD-Healthy-Eating_May-2010.pdf (504.07 KB)



  • Living a “normal” life with CHD: Tom O’Grady

Download Final-TGrady-Toronto-presentation.pdf (1.87 MB)

  • Sports and exercise: D. Tobler, MD

Download Patient-conference-Tobler.pdf (155.22 KB)

  • Heart failure: H. Balint, MD

Download Patient-conference_HF_HB.pdf (169.48 KB)

  • Adult congenital heart disease tsunami: Erwin Oechslin, MD

PDF icon Download ACHD-Tsunami.pdf (5.47 MB)

  • Strategies for heart health: healthy eating

Download ACHD-Healthy-Eating_May-2010.pdf (504.07 KB)



  • Managing Anxiety about Medical Procedures: Dr. Adrienne Kovacs, Clinical Psychologist, TCCCA

Download ACHD_Pt-Conference_Toronto_May_2008.pdf (63.88 KB)

  • Pacemaker and Defibrillators: Andrew Gentilin, RN, APN, Electrophysiology/Cardiology, TCCCA

Download ACHD-Pacemakers-and-Defibrillators.pdf (510.47 KB)

  • Contraception and Pregnancy: Dr. Candice Silversides, Research Director, TCCCA

PDF icon Download Pregnancy-and-Contraception.pdf (411.87 KB)

Congenital Heart Surgeons' Society Data Center
The Congenital Heart Surgeons' Society Data Center takes pride in their research and it would not be possible without the annual participation of the patients and families enrolled in their studies. Please click on the banner to be part of their team and to join their community.


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