Canadian Congenital Heart Alliance

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November 29, 2022 is Giving Tuesday!

Giving Tuesday is a global movement that started in 2013, dedicated to giving back and acts as the opening day of the giving season! It's a time where we encourage all of you to join together and rally for the Canadian Congenital Heart Alliance. 

Giving Tuesday harnesses the potential of social media and generosity of people around the world to bring about real change in their communities. It provides a platform for CCHA to encourage the donation of time, resources and talents to address the challenges the CHD community faces, with more than...

heart, heart disease, heart defect, survey, Canada, heart health, healthcare, health access, health equity, cardiac, congenital heart, congenital heart disease, congenital heart defect, feedback

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Thank you for participating in this important survey on access to congenital heart disease care in Canada

https://www.surveymonkey.ca/r/QYQXGC3

A CHD national advisory committee (CHD-NAC) has been convened to collaboratively lead the development of a Canadian CHD strategy and implementation of a CHD action plan. Lead by Heart & Stroke, the CHD-NAC consists of a core group of strategic leaders representing, The Canadian Pediatric Cardiology Association, Canadian Adult Congenital Heart Network, Canadian Cardiovascular Society, Canadian Congenital Heart Alliance, Canadian Congenital...

Multiple images of people playing sports and exercising on top of Exercise and CHD title and event details

Exciting event! Virtual Exercise and CHD event for children and families hosted by Virtual Heart Connection through their 'Connecting Caregivers' program.

Register here https://forms.gle/1px4EwXfiayAHVjK9

CCHA's Brenaven Kugamoorthy, a kinesiologist from UofT who has an interest in physical activity for individuals with congenital heart diseases, to give a 30 minute talk on recommendations for exercise programs, different modalities of exercise children and caregivers/parents can do together to meet their demands and capacities. This talk will be mostly targeted towards caregivers/parents...

heart, heart disease, heart defect, heart health, healthy living, congenital heart, congenital heart defect, CHD, board, board of directors, volunteer

 

The Canadian Congenital Heart Alliance (CCHA) is looking for its next generation of leaders to fill critical volunteer positions on our national Board of Directors. This elected group supports the work of CCHA and provides mission-based leadership and strategic governance.  We believe that a highly effective Board includes members from across Canada from many walks of life and that this diversity helps to best guide the overall strategic management and stewardship of the Foundation.  The CCHA’s Nominating Committee needs your help to identify Board candidates. We are looking for committed people...

heart defects, heart disease, charity, CHD, heart month, heart, congenital heart defect, congenital heart disease, birth defect, 1 in 100, chd awareness, chd advocacy

 

CCHA is partnering with 3D Heart Project.

Congratulations to Dr. Carolina Escudero and her 3D Heart project team for winning the $10,000 viewers choice prize from WCCHNs 2022 BoostUP competition!

CCHA is excited to annouce we have partnered with the 3D Heart Project, an innovative cardiac project whose vision is to improve understanding for children, adults and their families of their heart defect and diagnosis by creating an open and freely accessible educational resource using 3D models. Education and access to CHD resources for individuals and families and trainees is vital to being engaged...

heart defects, heart disease, charity, CHD, heart month, heart, congenital heart defect, congenital heart disease, birth defect, 1 in 100, chd awareness, chd advocacy

 

Happy Heart Month 2022 from the Canadian Congenital Heart Alliance (CCHA)!

This year our Heart Month campaign focuses on the number four - 4 chambers in the heart; 4 weeks in February; 4 values in our mission. We advocate for and enrich the lives of people with congenital heart disease (CHD) through awareness, education, research and support. And this month, we've got a line-up of engaging events and campaigns 4 you!

This month we will make announcements, introduce #hastag challenges, launch new resources, and host family activities and more. Stay tuned to see how we have #CanadaLitRed4CHD to...

Heart Defect, heart disease, virtual camp, Fontan, congenital heart disease, CHD

 

CCHA is pleased to partner with Virtual Heart Connection for their 2nd annual Virtual Fontan Heart Camp. 

To register https://forms.gle/W8rgkjNAzpAX5wVW6

Event Date: Saturday, February 26, 2022
Event Time: 9am – 3pm (Mountain Time)
Event Agenda: View Agenda Here
Event Location: Online
Eligibility: Children between the ages of 8-15 who had Fontan surgery and are followed by a cardiologist anywhere in Canada!
RSVP EXTENDED! Register by January 22, 2022 – Space is Limited!

Event Description

Join us on Saturday, February 26, 2022 from 9am – 3pm (Mountain Time)
for the second Western Canadian...

2021 support for families living with heart defects and congenital heart disease

 

CCHA is excited to look back at some of our accomplishments this year. These accomplishments wouldn't be possible without generous donations and support from our CHD community, we thank you from the bottom of our hearts.

See how your support helps us achieve our mission to advocate for and enrich the lives of people living with CHD through awareness, education, research and support for families living with heart defects.

Your support will help us continue to move forward with our mission – DONATE HERE

Advocacy

2021 House of Commons statement by Karen Vecchio (MP Elgin-London-Middlesex Deputy...

fundraiser, heart defects, heart disease, charity, CHD, small business, holiday shopping, buy Canadian, virtual market

 

Welcome to the 2021 virtual Holiay Market in support of CCHA acheiving our mission to advocate for and enrich the lives of people living with Congenital Heart Disease (CHD) through awareness, education, research and support.

This year we have 7 vendors participating, be sure to check often for deals and special offers!

Join the FB market https://www.facebook.com/groups/415193386162756 or use the links below to shop.

Thank you for your support of small business and CCHA.

fundraiser, heart defects, heart disease, charity, CHD, small business, holiday shopping, buy Canadian, virtual market, buy local  Pampered Chef - Robbyn McLellan - bit.ly/PamperedChefCCHA

 

fundraiser, heart defects, heart disease, charity, CHD, small business, holiday shopping, buy Canadian, virtual market, buy local  Scentsy - Tamara Sasseville - bit.ly/ScentsyPartyCCHA

fundraiser, heart defects, heart disease, charity, CHD, small business, holiday shopping, buy Canadian, virtual market, buy local  Thirty-one...

Karen Vecchio MP reading statement for CHD Awareness Week in House of Commons virtually

 

#CHDAwarenessWeek may be over but we continue to work year-round to improve #CHD resources, support, and research.

Special appreciation goes to Karen Vecchio, Member of Parliament (Elgin-London-Middlesex) for her statement in the House of Commons recognizing Congenital Heart Disease Awareness Week (Feb 7-14) and supporting Canadian families living with Congenital Heart Disease.

Karen Vecchio, MP is Deputy House Leader of the Official Opposition.

https://fb.watch/3Qga8qeI42/

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Congenital Heart Surgeons' Society Data Center
The Congenital Heart Surgeons' Society Data Center takes pride in their research and it would not be possible without the annual participation of the patients and families enrolled in their studies. Please click on the banner to be part of their team and to join their community.

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