Canadian Congenital Heart Alliance

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Join the movement - CHD Awareness
 
Be part of a growing movement to increase #CHD Awareness. Join CCHA in the fight!
 
Advocate   CCHA on Facebook  CCHA on Twitter  CCHA on Instagram   @cchaforlife
 
Volunteer   Volunteer with CCHA
 
Donate       Donate to CCHA
 
 
Transitioning from pediatric to adult CHD care

We are excited to announce the launch of our revised and expanded Transition information section on our website, which includes an outline of transition timeline recommendations and a tools and resources section to support and educate youth and families during the transition process. Check it out!

General information about Transition and Risks: https://www.cchaforlife.org/transition 

Transition timeline recommendations: https://www.cchaforlife.org/transition-timeline-recommendations

Tools and Resources: https://www.cchaforlife.org/transition-tools-resources

 
In other news, CCHA collaborated...
CCHA: A Case to Support the Heart

Help CCHA deliver hope this season

Donate Now Through CanadaHelps.org!PayPal donation

The Canadian Congenital Heart Alliance (CCHA) is the only national organization that supports and advocates for the over 257,000 children and adults in Canadian living with Congenital Heart Disease (CHD).

CHD is  the most common birth defect, affecting 1 in 100 babies born worldwide.  CHD is a general term for a range of birth defects that affect the normal way the heart works, and are present at birth. It requires lifelong, specialized care including many auxiliary needs and challenges such as; insurance, mental health, disability, financial planning...

Multiple images of people playing sports and exercising on top of Exercise and CHD title and event details

Exciting event! Virtual Exercise and CHD event for children and families hosted by Virtual Heart Connection through their 'Connecting Caregivers' program.

Register here https://forms.gle/1px4EwXfiayAHVjK9

CCHA's Brenaven Kugamoorthy, a kinesiologist from UofT who has an interest in physical activity for individuals with congenital heart diseases, to give a 30 minute talk on recommendations for exercise programs, different modalities of exercise children and caregivers/parents can do together to meet their demands and capacities. This talk will be mostly targeted towards caregivers/parents...

CHD family picnic in Edmonton, July 9, 2022, for heart defects

 

You are invited to the Congenital Heart Family Picnic in Edmonton, AB

When: Saturday July 9, 2022 11am - 2pm

Who: All children with Congenital Heart Disease and their families

Where: in person at Rundle Park

To register https://docs.google.com/forms/d/e/1FAIpQLSfWPL5jPL0ptaDag6Mof2szqISSlmMC...

Stay up to date through social media with @virtualheartconnection

Facebook:  https://www.facebook.com/VirtualFontanCamp/

Instagram:  https://www.instagram.com/virtualheartconnection/

For questions, email...

image of heart model for congenital heart defects and heart disease
The Canadian Fontan website is your one stop shop for all things Fontan related, whether you are a health care provider or living with Fontan. Follow the link to find out everything you need to know about Fontan physiology, how far we have come and what we hope for the future.

The Canadian Fontan website and registry is for adults and parents of Fontan children as well as CHD medical professionals. The site includes patient stories, educational resources, registry and notification of research projects. Check it out!

https://canadianfontan.com/

 

#CanadianFontan

Fontan, heart, heart defect, heart disease, heart month, CHD, congenital heart disease, patient education, CHD education, congenital heart defect,

 

The 2022 Fontan Education Day took place on April 24, 2022. Be sure to check back shortly for information and liks to the content from the Education Day.

Be sure to check out the Canadian Fontan website and patient registry, for individuals and familys of all ages with Fontan  https://canadianfontan.com/

 

 

Online shopping image

Opportunity for small businesses! CCHA will be holding our second annual Virtual Holiday Market between November 22nd and December 5th.

If you are a small business interested in participating and supporting CCHA please contact robbyn@cchaforlife.org by November 12th, 2021.

CCHA logo

Date:       Tuesday June 22, 2020

Time:       7:30-9:00pm EDT

Where:    Virtual - videoconference and phone

 

2021 AGM Documents

2021 CCHA AGM presentation  PDF icon Download 2021 CCHA AGM Presentation_Final.pdf (1.82 MB)

2020 CCHA AGM minutes  PDF icon Download CCHA 2020 AGM Minutes - draft.pdf (101.11 KB)

2020 CCHA Financial Statements PDF icon Download Canadian Congential Heart Alliance Dec 2020 Financial Statements_signed.pdf (289.63 KB)

2021 Board candidates  PDF icon Download 2021 CCHA Board.pdf (324.69 KB)

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Assemblée Générale Annuelle

Date:       mardi 22 juin 2021

Heure:     19 h 30n...

Applications for Board of Directors positions now open

 

The Canadian Congenital Heart Alliance (CCHA) is looking for its next generation of leaders to fill critical volunteer positions on our national Board of Directors. This elected group supports the work of CCHA and provides mission-based leadership and strategic governance.  We believe that a highly effective Board includes members from across Canada from many walks of life and that this diversity helps to best guide the overall strategic management and stewardship of the Foundation.  The CCHA’s Nominating Committee needs your help to identify Board candidates. We are looking for committed people...

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Are you an adult with congenital heart diseases? To find a cardiologist with specialized training in adult congenital heart disease, please read for important info.

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