Canadian Congenital Heart Alliance

#CardiopathieCongenitale

Fontan camp for kids with CHD, virtual camp, heart defects

 

We are excited to annouce the 1st Pan-Canadian Virtual Fontan Heart Camp: November 26, 2022: 9 am - 3 pm (MT) with Virtual Heart Connection!

Organized in association with the Pediatric Cardiology team at the Stollery Children's Hospital, Edmonton, AB.

The goal is to connect children who have had a Fontan operation to others similar to them through this FREE, 1-day event via fun activities such as games, arts & crafts, cookie decorating, Fontan testimonies and answering any questions you may have about your heart. You will receive an activity package to do together on the day prior to the...

CCHA logo

Date:       Tuesday June 22, 2021

Time:       7:30-9:00pm EDT

Where:    Virtual - videoconference and phone

 

2021 AGM Documents

2021 CCHA AGM presentation  PDF icon Download 2021 CCHA AGM Presentation_Final.pdf (1.82 MB)

2020 CCHA AGM minutes  PDF icon Download CCHA 2020 AGM Minutes - draft.pdf (101.11 KB)

2020 CCHA Financial Statements PDF icon Download Canadian Congential Heart Alliance Dec 2020 Financial Statements_signed.pdf (289.63 KB)

2021-2022 Board candidates  PDF icon Download 2021 CCHA Board.pdf (324.69 KB)

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Assemblée Générale Annuelle

Date:       mardi 22 juin 2021

Heure:     19 h...

Applications for Board of Directors positions now open

 

The Canadian Congenital Heart Alliance (CCHA) is looking for its next generation of leaders to fill critical volunteer positions on our national Board of Directors. This elected group supports the work of CCHA and provides mission-based leadership and strategic governance.  We believe that a highly effective Board includes members from across Canada from many walks of life and that this diversity helps to best guide the overall strategic management and stewardship of the Foundation.  The CCHA’s Nominating Committee needs your help to identify Board candidates. We are looking for committed people...

Advocacy information for parents and adults with CHD

 

For individuals and parents of a child living with a congenital heart condition, self-advocacy skills are necessary to communicate with all their health care providers, manage their day to day activities and make effective use of community resources.

What is Self-Advocacy? Self-advocacy is when a person is able to speak up in order to communicate their needs. In medical settings, self-advocacy strategies are helpful to make sure you and/or your family are understood, that your needs are being met, and that you have understood the information and advice you've been given by your healthcare...

Scrabble tiles with letters spelling Mental Health

Image by Wokandapix from Pixabay

Congenital heart disease affects over 257,000 Canadians. Many experience mental health issues living with their CHD.

CCHA conducted a Mental Health survey* in October of 2020. We received 66 responses from across Canada.

88% of adults living with #CHD have experienced mental health challenges at some point.

75% of those living with CHD have discussed mental health concerns with a healthcare professional. Only 41% have been referred for mental health services by those same providers or another healthcare provider?

46% of those living with CHD don’t feel like...

Giving Tuesday December 1

 

Giving Tuesday gives us the opportunity to raise CHD awareness. This year, we are reflecting back on some of our accomplishments, showing how your generous donations and support made all this possible.

File Download CCHA Giving Tuesday video _FINAL.mp4 (8.61 MB)

We hope we can continue to count on you to support our mission to advocate for and enrich the lives of people living with CHD through awareness, education, research and support.

How will you support CHD families and CHD awareness this Giving Tuesday!
 
Advocate   CCHA on Facebook  CCHA on Twitter  CCHA on Instagram    @cchaforlife
 
Volunteer   Volunteer with CCHA
 
Donate       Donate to CCHA
 
 
Canadian Congenital Heart Alliance logo

Date:       Wednesday June 24, 2020

Time:       8-9:30pm EDT

Where:    Virtual - videoconference and phone   

 

2020 AGM Documents

2020 CCHA AGM presentation  PDF icon Download 2020 CCHA AGM Presentation.pdf (1.04 MB)

2019 CCHA AGM minutes  PDF icon Download CCHA 2019 AGM minutes_draft.pdf (209.48 KB)

2019 CCHA Financial Statements  PDF icon Download Canadian Congential Heart Alliance Dec 2019 - Financial Statements - Final.pdf (228.93 KB)

2020-2021 Board of Directors  PDF icon Download 2020 CCHA Board of Directors_AGM.pdf (308.36 KB)

 

Assemblée Générale Annuelle

Date:       mecredi 24 juin 2020

Heure:     20 h à 21 h 30 HAE

Où:         visioconférence et téléphone...

COVID19 and CHD resources

 

Please feel free to share during this time of social distancing and stay-at-home orders

ACTIVITIES

Be sure to check your local library’s website, they usually have free resources and programs!

Bored at home? Here's a massive list of museums, zoos and theme parks offering virtual tours: https://www.goodhousekeeping.com/life/travel/a31784720/best-virtual-tour...

10 of the world’s best virtual museum and art gallery tours: https://www.theguardian.com/travel/2020/mar/23/10-of-the-worlds-best-virtual-museum-and-art- gallery-tours

New item added Best of Ireland - The 7 Best Virtual Tours to Take in Ireland: 

Stay home save lives COVID19

Image_by Grégory ROOSE from Pixabay(4983843_1280)

The World Health Organization officially declared COVID-19 a global pandemic on March 11, 2020 with Canada and provinces putting lockdowns in place shortly thereafter.  For 7 weeks now Canadians having been living through this COVID-19 pandemic.  We are all living with heightened emotions, living life day to day, not knowing what tomorrow or next week is going to look like, unable to make plans for the future.  We are all dealing with emotions such as fear and anxiety due to uncertainty and stress about jobs, school, financial wellbeing, health...

CHD Awareness Week in media

 

Jennifer Michaud - CCHA Board member shares her CHD story on the Marilyn Denis show.

https://www.marilyn.ca/Health/Articles/February2020/Filling-the-research-gap.

You can see her Heart and Stroke interview here

https://youtu.be/5CBy3zmjNAM

 

CTV2 London – Hearts of London/Middlesex chapter of CCHA with Chair Lisa Wright and Owen Gillet – Feb 11, 2020

Owen Gillet shares his CHD story of living with HLHS, diagnosed with a life-threatening congenital heart defect weeks before he was born, and he hopes his story of survival will help others.

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Check out how congenital heart disease stacks up against better recognized diseases in Canada! So many affected and so little awareness and funding! Get involved with CCHA, donate, and spread the word about the growing population of of "survivors" so that we can get the care and support we need to live long, healthy lives!

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