Canadian Congenital Heart Alliance

CHD

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jennifer
November 1, 2023
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heart, congenital heart disease, heart disease, heart defect, congenital heart defect, heart surgery, open heart surgery,

Virtual Congenital Heart Choir

Are you a child living with congenital heart disease in Canada? Do you like to sing? Are you looking for something fun to do inside over the long Canadian Winter?

Why not join our CHD children's choir! Brought to you by musicians from the Virtual Heart Connection (VHC) in association with the Canadian Congenital Heart Alliance (CCHA), you will learn a medley of songs and sing together with other CHD kids.

Sessions will start with vocal warm-up exercises followed by learning the song. Participants will have an optional chat time with each other at the end...

News
jennifer
September 15, 2023
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heart, heart defect, heart disease, congenital heart disease, congenital heart defect, OHS, #ohs, CHD, #CHD, heart health, education, CHD advocacy, CHD education, CHD awareness, heart disease

FR

This week is Heart Valve Disease Awareness Week (Sept 11-17).

Many people living with CHD have defects that include the valves in their heart. The 4 valves of the heart are:

Tricuspid valve: between the right atrium and the right ventricle.

Pulmonary valve: between the right ventricle and the pulmonary artery.

Mitral valve: between the left atrium and the left ventricle.

Aortic valve: between the aorta and left ventricle.

heart, heart defect, heart disease, congenital heart disease, congenital heart defect, OHS, #ohs, CHD, #CHD, heart health, education, CHD advocacy, CHD education, CHD awareness, heart disease source https://www.ottawaheart.ca/heart-condition/heart-valve-disease

Valve repair or replacement may be required to treat their CHD. Some types of replacement valves may...

News
jennifer
May 6, 2022
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heart, heart disease, heart defect, heart health, healthy living, congenital heart, congenital heart defect, CHD, board, board of directors, volunteer

 

The Canadian Congenital Heart Alliance (CCHA) is looking for its next generation of leaders to fill critical volunteer positions on our national Board of Directors. This elected group supports the work of CCHA and provides mission-based leadership and strategic governance.  We believe that a highly effective Board includes members from across Canada from many walks of life and that this diversity helps to best guide the overall strategic management and stewardship of the Foundation.  The CCHA’s Nominating Committee needs your help to identify Board candidates. We are looking for committed people...

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jennifer
February 4, 2022
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heart defects, heart disease, charity, CHD, heart month, heart, congenital heart defect, congenital heart disease, birth defect, 1 in 100, chd awareness, chd advocacy

 

CCHA is partnering with 3D Heart Project.

Congratulations to Dr. Carolina Escudero and her 3D Heart project team for winning the $10,000 viewers choice prize from WCCHNs 2022 BoostUP competition!

CCHA is excited to annouce we have partnered with the 3D Heart Project, an innovative cardiac project whose vision is to improve understanding for children, adults and their families of their heart defect and diagnosis by creating an open and freely accessible educational resource using 3D models. Education and access to CHD resources for individuals and families and trainees is vital to being engaged...

News
jennifer
February 1, 2022
0
heart defects, heart disease, charity, CHD, heart month, heart, congenital heart defect, congenital heart disease, birth defect, 1 in 100, chd awareness, chd advocacy

 

Happy Heart Month 2022 from the Canadian Congenital Heart Alliance (CCHA)!

This year our Heart Month campaign focuses on the number four - 4 chambers in the heart; 4 weeks in February; 4 values in our mission. We advocate for and enrich the lives of people with congenital heart disease (CHD) through awareness, education, research and support. And this month, we've got a line-up of engaging events and campaigns 4 you!

This month we will make announcements, introduce #hastag challenges, launch new resources, and host family activities and more. Stay tuned to see how we have #CanadaLitRed4CHD to...

News
jennifer
January 10, 2022
0
Heart Defect, heart disease, virtual camp, Fontan, congenital heart disease, CHD

 

CCHA is pleased to partner with Virtual Heart Connection for their 2nd annual Virtual Fontan Heart Camp. 

To register https://forms.gle/W8rgkjNAzpAX5wVW6

Event Date: Saturday, February 26, 2022
Event Time: 9am – 3pm (Mountain Time)
Event Agenda: View Agenda Here
Event Location: Online
Eligibility: Children between the ages of 8-15 who had Fontan surgery and are followed by a cardiologist anywhere in Canada!
RSVP EXTENDED! Register by January 22, 2022 – Space is Limited!

Event Description

Join us on Saturday, February 26, 2022 from 9am – 3pm (Mountain Time)
for the second Western Canadian...

News
jennifer
February 23, 2021
0
Karen Vecchio MP reading statement for CHD Awareness Week in House of Commons virtually

 

#CHDAwarenessWeek may be over but we continue to work year-round to improve #CHD resources, support, and research.

Special appreciation goes to Karen Vecchio, Member of Parliament (Elgin-London-Middlesex) for her statement in the House of Commons recognizing Congenital Heart Disease Awareness Week (Feb 7-14) and supporting Canadian families living with Congenital Heart Disease.

Karen Vecchio, MP is Deputy House Leader of the Official Opposition.

https://fb.watch/3Qga8qeI42/

CCHA logo

FR         

Date:       Monday June 19, 2023

Time:       7:30-9:00pm EDT

Where:    Virtual - videoconference and phone

2023 AGM Documents

2023 CCHA AGM presentation  PDF icon Download 2023 CCHA AGM Presentation_Final.pdf (2.02 MB)

2022 CCHA AGM minutes   PDF icon Download CCHA 2022 AGM Minutes.pdf (195.45 KB) 

2022 CCHA Financial Statements   PDF icon Download Canadian Congenital Heart Alliance Dec 2022 - Financial Statements - Final.pdf (282.31 KB) 

2023-2024  Board of Directors   PDF icon Download 2023 CCHA Board of Directors.pdf (309.37 KB)

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Assemblée Générale Annuelle

Date:       lundi 19 juin 2023

Heure:     19 h 30 à 21 h HAE

O...

Canadian Congenital Heart Alliance (CCHA) shares stories of Congenital Heart Disease (CHD) journeys with the CHD community. However, we also want to share and honour those who were lost too soon. We share these stories to help connect people and families with similar experiences, offer support, and emphasize the need for further research and awareness of CHD.

The tribute is shared on social media twice a year. Once at the end of Heart Month on February 28 and again later in the year.

By responding to this form you are consenting to CCHA using your story and photograph (if applicable) for...

CHD family picnic in Edmonton, July 9, 2022, for heart defects

 

You are invited to the Congenital Heart Family Picnic in Edmonton, AB

When: Saturday July 9, 2022 11am - 2pm

Who: All children with Congenital Heart Disease and their families

Where: in person at Rundle Park

To register https://docs.google.com/forms/d/e/1FAIpQLSfWPL5jPL0ptaDag6Mof2szqISSlmMC...

Stay up to date through social media with @virtualheartconnection

Facebook:  https://www.facebook.com/VirtualFontanCamp/

Instagram:  https://www.instagram.com/virtualheartconnection/

For questions, email...

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Check out how congenital heart disease stacks up against better recognized diseases in Canada! So many affected and so little awareness and funding! Get involved with CCHA, donate, and spread the word about the growing population of of "survivors" so that we can get the care and support we need to live long, healthy lives!

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