Canadian Congenital Heart Alliance

#CHD

Fontan camp for kids with CHD, virtual camp, heart defects

 

We are excited to annouce the 1st Pan-Canadian Virtual Fontan Heart Camp: November 26, 2022: 9 am - 3 pm (MT) with Virtual Heart Connection!

Organized in association with the Pediatric Cardiology team at the Stollery Children's Hospital, Edmonton, AB.

The goal is to connect children who have had a Fontan operation to others similar to them through this FREE, 1-day event via fun activities such as games, arts & crafts, cookie decorating, Fontan testimonies and answering any questions you may have about your heart. You will receive an activity package to do together on the day prior to the...

image of heart model for congenital heart defects and heart disease
The Canadian Fontan website is your one stop shop for all things Fontan related, whether you are a health care provider or living with Fontan. Follow the link to find out everything you need to know about Fontan physiology, how far we have come and what we hope for the future.

The Canadian Fontan website and registry is for adults and parents of Fontan children as well as CHD medical professionals. The site includes patient stories, educational resources, registry and notification of research projects. Check it out!

https://canadianfontan.com/

 

#CanadianFontan

Fontan, heart, heart defect, heart disease, heart month, CHD, congenital heart disease, patient education, CHD education, congenital heart defect,

 

The 2022 Fontan Education Day took place on April 24, 2022. Be sure to check back shortly for information and liks to the content from the Education Day.

Be sure to check out the Canadian Fontan website and patient registry, for individuals and familys of all ages with Fontan  https://canadianfontan.com/

 

 

CCHA logo

Date:       Tuesday June 22, 2020

Time:       7:30-9:00pm EDT

Where:    Virtual - videoconference and phone

 

2021 AGM Documents

2021 CCHA AGM presentation  PDF icon Download 2021 CCHA AGM Presentation_Final.pdf (1.82 MB)

2020 CCHA AGM minutes  PDF icon Download CCHA 2020 AGM Minutes - draft.pdf (101.11 KB)

2020 CCHA Financial Statements PDF icon Download Canadian Congential Heart Alliance Dec 2020 Financial Statements_signed.pdf (289.63 KB)

2021 Board candidates  PDF icon Download 2021 CCHA Board.pdf (324.69 KB)

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Assemblée Générale Annuelle

Date:       mardi 22 juin 2021

Heure:     19 h 30n...

Applications for Board of Directors positions now open

 

The Canadian Congenital Heart Alliance (CCHA) is looking for its next generation of leaders to fill critical volunteer positions on our national Board of Directors. This elected group supports the work of CCHA and provides mission-based leadership and strategic governance.  We believe that a highly effective Board includes members from across Canada from many walks of life and that this diversity helps to best guide the overall strategic management and stewardship of the Foundation.  The CCHA’s Nominating Committee needs your help to identify Board candidates. We are looking for committed people...

Illustration of Penelope

 

The Canadian Congenital Heart Alliance is thrilled to announce the launch of a children's book "Penelope goes for her heart checkup".

Follow Penelope - a young girl - as she travels to the hospital for her ‘heart checkup’ with her Heart Team in this beautifully illustrated book for children ages 5-8. 

To learn more and download the book visit https://www.cchaforlife.org/penelope-goes-her-heart-checkup

KIDS ACTIVITY ALERT!!!  To be a part of Penelope's journey, download the colouring page below. Colour Penelope and her Heart Team and take a pic of the completed colouring page, tag us...

Illustration of Penelope

The Canadian Congenital Heart Alliance launched their children's book "Penelope goes for her heart checkup" in February 2021.

This illustrated book for children ages 5-8, follows Penelope - a young girl - as she travels to the hospital for her ‘heart checkup’. Reading this story with your child a few days before their ‘heart checkup’ will assist in preparing them for their visit with the 'Heart Team'.

The book includes 2 colouring activity pages to help your child engage with Penelope on her journey. Download here PDF icon Download Penelope and her Heart Team colouring page.pdf (180.32 KB)

Some...

Advocacy information for parents and adults with CHD

 

For individuals and parents of a child living with a congenital heart condition, self-advocacy skills are necessary to communicate with all their health care providers, manage their day to day activities and make effective use of community resources.

What is Self-Advocacy? Self-advocacy is when a person is able to speak up in order to communicate their needs. In medical settings, self-advocacy strategies are helpful to make sure you and/or your family are understood, that your needs are being met, and that you have understood the information and advice you've been given by your healthcare...

Scrabble tiles with letters spelling Mental Health

Image by Wokandapix from Pixabay

Congenital heart disease affects over 257,000 Canadians. Many experience mental health issues living with their CHD.

CCHA conducted a Mental Health survey* in October of 2020. We received 66 responses from across Canada.

88% of adults living with #CHD have experienced mental health challenges at some point.

75% of those living with CHD have discussed mental health concerns with a healthcare professional. Only 41% have been referred for mental health services by those same providers or another healthcare provider?

46% of those living with CHD don’t feel like...

Giving Tuesday December 1

 

Giving Tuesday gives us the opportunity to raise CHD awareness. This year, we are reflecting back on some of our accomplishments, showing how your generous donations and support made all this possible.

File Download CCHA Giving Tuesday video _FINAL.mp4 (8.61 MB)

We hope we can continue to count on you to support our mission to advocate for and enrich the lives of people living with CHD through awareness, education, research and support.

How will you support CHD families and CHD awareness this Giving Tuesday!
 
Advocate   CCHA on Facebook  CCHA on Twitter  CCHA on Instagram    @cchaforlife
 
Volunteer   Volunteer with CCHA
 
Donate       Donate to CCHA
 
 

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Check out how congenital heart disease stacks up against better recognized diseases in Canada! So many affected and so little awareness and funding! Get involved with CCHA, donate, and spread the word about the growing population of of "survivors" so that we can get the care and support we need to live long, healthy lives!

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