Canadian Congenital Heart Alliance

#CHD

News
jennifer
December 19, 2019
0
CCHA: A Case to Support the Heart

Help CCHA deliver hope this season

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The Canadian Congenital Heart Alliance (CCHA) is the only national organization that supports and advocates for the over 257,000 children and adults in Canadian living with Congenital Heart Disease (CHD).

CHD is  the most common birth defect, affecting 1 in 100 babies born worldwide.  CHD is a general term for a range of birth defects that affect the normal way the heart works, and are present at birth. It requires lifelong, specialized care including many auxiliary needs and challenges such as; insurance, mental health, disability, financial planning...

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Date:       Monday June 19, 2023

Time:       7:30-9:00pm EDT

Where:    Virtual - videoconference and phone

To enable all our members to attend the AGM, we will be holding our AGM via video conference/phone this year and we would love for you to join us.  Hear updates on the latest projects and activities going on at CCHA to help provide the best support possible for those living with congenital heart disease.

CCHA AGM 2023

Monday, June 19 · 7:15 – 9:45pm EDT

Google Meet video call link: https://meet.google.com/dee-ncdp-xcn

Can't join by computer or mobile device? Join by telephone: ‪(CA) +1 289-316-...

Canadian Congenital Heart Alliance (CCHA) shares stories of Congenital Heart Disease (CHD) journeys with the CHD community. However, we also want to share and honour those who were lost too soon. We share these stories to help connect people and families with similar experiences, offer support, and emphasize the need for further research and awareness of CHD.

The tribute is shared on social media twice a year. Once at the end of Heart Month on February 28 and again later in the year.

By responding to this form you are consenting to CCHA using your story and photograph (if applicable) for...

Multiple images of people playing sports and exercising on top of Exercise and CHD title and event details

Exciting event! Virtual Exercise and CHD event for children and families hosted by Virtual Heart Connection through their 'Connecting Caregivers' program.

Register here https://forms.gle/1px4EwXfiayAHVjK9

CCHA's Brenaven Kugamoorthy, a kinesiologist from UofT who has an interest in physical activity for individuals with congenital heart diseases, to give a 30 minute talk on recommendations for exercise programs, different modalities of exercise children and caregivers/parents can do together to meet their demands and capacities. This talk will be mostly targeted towards caregivers/parents...

CHD family picnic in Edmonton, July 9, 2022, for heart defects

 

You are invited to the Congenital Heart Family Picnic in Edmonton, AB

When: Saturday July 9, 2022 11am - 2pm

Who: All children with Congenital Heart Disease and their families

Where: in person at Rundle Park

To register https://docs.google.com/forms/d/e/1FAIpQLSfWPL5jPL0ptaDag6Mof2szqISSlmMC...

Stay up to date through social media with @virtualheartconnection

Facebook:  https://www.facebook.com/VirtualFontanCamp/

Instagram:  https://www.instagram.com/virtualheartconnection/

For questions, email...

Fontan camp for kids with CHD, virtual camp, heart defects

 

We are excited to annouce the 1st Pan-Canadian Virtual Fontan Heart Camp: November 26, 2022: 9 am - 3 pm (MT) with Virtual Heart Connection!

Organized in association with the Pediatric Cardiology team at the Stollery Children's Hospital, Edmonton, AB.

The goal is to connect children who have had a Fontan operation to others similar to them through this FREE, 1-day event via fun activities such as games, arts & crafts, cookie decorating, Fontan testimonies and answering any questions you may have about your heart. You will receive an activity package to do together on the day prior to the...

image of heart model for congenital heart defects and heart disease
The Canadian Fontan website is your one stop shop for all things Fontan related, whether you are a health care provider or living with Fontan. Follow the link to find out everything you need to know about Fontan physiology, how far we have come and what we hope for the future.

The Canadian Fontan website and registry is for adults and parents of Fontan children as well as CHD medical professionals. The site includes patient stories, educational resources, registry and notification of research projects. Check it out!

https://canadianfontan.com/

 

#CanadianFontan

Fontan, heart, heart defect, heart disease, heart month, CHD, congenital heart disease, patient education, CHD education, congenital heart defect,

 

The 2022 Fontan Education Day took place on April 24, 2022. Be sure to check back shortly for information and liks to the content from the Education Day.

Be sure to check out the Canadian Fontan website and patient registry, for individuals and familys of all ages with Fontan  https://canadianfontan.com/

 

 

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Date:       Tuesday June 22, 2021

Time:       7:30-9:00pm EDT

Where:    Virtual - videoconference and phone

 

2021 AGM Documents

2021 CCHA AGM presentation  PDF icon Download 2021 CCHA AGM Presentation_Final.pdf (1.82 MB)

2020 CCHA AGM minutes  PDF icon Download CCHA 2020 AGM Minutes - draft.pdf (101.11 KB)

2020 CCHA Financial Statements PDF icon Download Canadian Congential Heart Alliance Dec 2020 Financial Statements_signed.pdf (289.63 KB)

2021-2022 Board candidates  PDF icon Download 2021 CCHA Board.pdf (324.69 KB)

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Assemblée Générale Annuelle

Date:       mardi 22 juin 2021

Heure:     19 h...

News
jennifer
May 21, 2021
0
Applications for Board of Directors positions now open

 

The Canadian Congenital Heart Alliance (CCHA) is looking for its next generation of leaders to fill critical volunteer positions on our national Board of Directors. This elected group supports the work of CCHA and provides mission-based leadership and strategic governance.  We believe that a highly effective Board includes members from across Canada from many walks of life and that this diversity helps to best guide the overall strategic management and stewardship of the Foundation.  The CCHA’s Nominating Committee needs your help to identify Board candidates. We are looking for committed people...

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Check out how congenital heart disease stacks up against better recognized diseases in Canada! So many affected and so little awareness and funding! Get involved with CCHA, donate, and spread the word about the growing population of of "survivors" so that we can get the care and support we need to live long, healthy lives!

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