Canadian Congenital Heart Alliance

#CHD

 

From 2016 to 2018 the Canadian Congenital Heart Alliance (CCHA) partnered with CHEO's HALO Research Institute, and recreational facilities in your local community to deliver Fearless Physical Activity events for children, teens, and adults living with congenital heart disease (CHD) across Ontario through funding from the Province of Ontario. Each season, Fearless Physical Activity events were held in London, Ottawa, Thunder Bay or Sudbury and Toronto for all ages and all levels of ability and experience! These events were very successful in creating new connections amongst families living with...

'Fearless' Physical Activity

The Canadian Congenital Heart Alliance (CCHA) is thrilled to announce they are the successful recipients of a grant from the Ontario Ministry of Tourism, Culture and Sport. This grant will fund a comprehensive, ground-breaking two-year study – ‘Fearless Physical Activity’ - to support the delivery of high-quality, meaningful physical activities for children, youth and adults with congenital heart disease (CHD) and their families.

Thanks to an Ontario Sport and Recreation Communities Fund grant of $186,934, this unique project, in collaboration with Dr. Pat Longmuir of the Healthy Active...

Read our stories of strength, perseverance and hope

Our Faces of CHD campaign from 2019 Heart Month https://www.cchaforlife.org/news/faces-chd

Sarah Trainor, via CBC (parent of CHD child)

John MacEachern (Discovering cardiac rehab at age 74)

Joe Bladek (Tetralogy of Fallot)

Anne-Marie Koeslag (Tricuspid atresia)

Emily Clarke (Transposition of the great arteries and tetralogy of Fallot)

Toby Marchegiano (complex congenital heart disease)

Shelagh Ross (Tetralogy of Fallot)

Mathew Moreira (Tricuspid artresia)

Carol Allan (Tetralogy of Fallot)

Angela Akerman (Complex congenital heart disease...

 

What is the Beat Retreat?

The Beat Retreat is a fun-filled, four-day weekend for adults with congenital heart disease. You’ll have an opportunity to participate in a mix of traditional camp activities – all geared to your physical ability and comfort level. Equally important, you’ll have an opportunity to make new friends and learn from the experiences of other CHD patients. You’ll also have an opportunity to chat with healthcare professionals in a relaxed and informal setting. In short, it’s a weekend of fun, friends, firsts, and great food.    

A picture is worth a 1,000 words.

Check our...

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Congenital Heart Surgeons' Society Data Center
The Congenital Heart Surgeons' Society Data Center takes pride in their research and it would not be possible without the annual participation of the patients and families enrolled in their studies. Please click on the banner to be part of their team and to join their community.

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