Canadian Congenital Heart Alliance

#CHDAdvocacy

Health records

Toronto Star reporter Kristin Rushowy shining the spotlight on issue of medical records retention, a growing problem for Canadians living with CHD who had surgery as a child.

https://www.thestar.com/news/queenspark/2017/07/28/medical-records-of-sick-kids-should-be-kept-for-life-group-urges.html

Province the first in Canada to offer screening to all healthy babies  By Jennifer Chevalier, CBC News. Photo Jean Delisle/CBC

 

The announcement that Pulse Oximetry Newborn Screening is coming to Ontario is amazing news for early detection of babies born with Critical Congenital Heart Defects (CCHD).

This program will help catch upwards of 150 babies a year born with Congenital Heart Disease (CHD) but who currently leave the hospital undiagnosed. “Early detection and treatment of CHD is critical in ensuring the best possible long-term quality of life for individuals that will live with this life-long disease" stated Krista Vriend, President of the Canadian Congenital Heart Alliance (CCHA). "Leadership and progress on...

Jimmy Kimmel

Much love to Jimmy Kimmel as he shares the emotional and heartfelt story of his family's CHD journey with their newborn son 'Billy'', born with Tetralogy of Fallot and Pulmonary Atresia.

A story that many people living with CHD, their parents and families and friends can relate to and understand.

https://youtu.be/MmWWoMcGmo0

A huge thank you to Jimmy Kimmel for the very powerful CHD Awareness and Advocacy story!

 

See as Dr. Oz explains about Tetralogy of Fallot to Jimmy Kimmel and some great insight into the incredible teams that perform these CHD surgeries.

https://youtu.be/6yKh2hNYBYo

 

Shaun...

Transitioning from pediatric to adult CHD care

Transition

Children pass many  milestones growing up, the first day of kindergarten, the liberty of becoming a licensed driver and -going-off-to-college or university, just to name a few. Parents give the necessary “talks” about responsibility, risk and behaviour. These transitions are thought of as rites of passage.

Prepping our youth for entry into adult health care should be no different than transitioning into college, university or into the workforce.  At some point, most individuals will assume responsibility for maintaining and managing their own health. There remains work to do to...

Read our stories of strength, perseverance and hope

Our Faces of CHD campaign from 2019 Heart Month https://www.cchaforlife.org/news/faces-chd

Sarah Trainor, via CBC (parent of CHD child)

John MacEachern (Discovering cardiac rehab at age 74)

Joe Bladek (Tetralogy of Fallot)

Anne-Marie Koeslag (Tricuspid atresia)

Emily Clarke (Transposition of the great arteries and tetralogy of Fallot)

Toby Marchegiano (complex congenital heart disease)

Shelagh Ross (Tetralogy of Fallot)

Mathew Moreira (Tricuspid artresia)

Carol Allan (Tetralogy of Fallot)

Angela Akerman (Complex congenital heart disease...

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