Canadian Congenital Heart Alliance

#heartdisease

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This survey is now closed.

Thank you for participating in this important survey on access to congenital heart disease care in Canada

https://www.surveymonkey.ca/r/QYQXGC3

A CHD national advisory committee (CHD-NAC) has been convened to collaboratively lead the development of a Canadian CHD strategy and implementation of a CHD action plan. Lead by Heart & Stroke, the CHD-NAC consists of a core group of strategic leaders representing, The Canadian Pediatric Cardiology Association, Canadian Adult Congenital Heart Network, Canadian Cardiovascular Society, Canadian Congenital Heart...

Multiple images of people playing sports and exercising on top of Exercise and CHD title and event details

Exciting event! Virtual Exercise and CHD event for children and families hosted by Virtual Heart Connection through their 'Connecting Caregivers' program.

Register here https://forms.gle/1px4EwXfiayAHVjK9

CCHA's Brenaven Kugamoorthy, a kinesiologist from UofT who has an interest in physical activity for individuals with congenital heart diseases, to give a 30 minute talk on recommendations for exercise programs, different modalities of exercise children and caregivers/parents can do together to meet their demands and capacities. This talk will be mostly targeted towards caregivers/parents...

Canadian flag

    City of Edmonton Proclaiming CHD Awareness Week  City of Calgary Proclaiming CHD Awareness Week  City of Chestermere Proclaiming CHD Awareness Week

Excited to see Alberta is leading the charge this year, proclaiming CHD Awareness Week in Edmonton, Calgary and Chestermere.

Thanks to our board member Jennifer M for submitting the requests. If you want to help us have even more cities across Canada proclaim CHD Awareness Week 2022, email us at info@cchaforlife.org to get involved!

 

Les villes canadiennes proclament la Semaine de sensibilisation aux cardiopathies congénitales

Je suis ravi de voir que l'Alberta mène la charge cette année, proclamant...

CN Tower lit red

Iconic buildings all across Canada are lighting up red for CHD Awareness Week!

Feb 7 - High Level Bridge - Edmonton AB https://www.edmonton.ca/attractions_events/schedule_festivals_events/lig...

Feb 7 - BC Place - Vancouver BC  https://www.facebook.com/BCPlaceStadium/posts/5594016120624553

Feb 9 - Calgary Tower - Calgary AB  https://www.calgarytower.com/about/light-shows/lighting-schedules/

Feb 12-14 - London City Hall, JA Taylor building, Canada Life building and RBC Place Convention Centre - London ON

Feb 14 - CN Tower - Toronto ON https://www.cntower.ca/en-ca/home.html#earthcams

Feb...

Images for family doing Trivia Night, children doing Scavenger Hunt and Person playing guitar for virtual concert

CCHA is thrilled to announce three exciting virtual events to raise CHD Awareness during Heart Month.

Congenital heart defects affect 1 in 100 births and is the most common birth defect. Congenital Heart Disease is a lifelong illness requiring specialized cardiac care.

VIRTUAL CONCERT

When:     Sunday February 28 at 7:00 - 8:30pm EST

Where:    Online event

Who:       4 talented musicians including Jake Ohanian, Russ Matthews, Tyler Mullendore

What:     Virtual Live concert. (to see our first concert visit https://www.cchaforlife.org/news/music-hearts-1-100-journey-virtual-concert)

Why:      To promote Congenital...

Beat Retreat, heart, heart disease, ACHD, CHD, heart defect, congenital heart defect, congenital heart disease, 1 in100, camp, disability, archery, canoeing. health

Registration is now open cancelled for 2023!

Unfortunatey the 2023 Beat Retreat camp has been cancelled due to low applications. However, we will be holding camp in 2024 so keep watch for more details this fall.

Don't miss out on the opportunity to see old friends and make new ones! The Canadian Congenital Heart Alliance (CCHA) along with the Beat Retreat is happy to present the 14th annual Beat Retreat camp September 7-10, 2023. 

What is the Beat Retreat?

The Beat Retreat is a fun-filled, four-day annual retreat for adults (18+) living with congenital heart disease (CHD). You’ll have an...

Multiple images of people playing sports and exercising on top of Exercise and CHD title and event details

Exciting event! Virtual Exercise and CHD event for children and families hosted by Virtual Heart Connection through their 'Connecting Caregivers' program.

Register here https://forms.gle/1px4EwXfiayAHVjK9

CCHA's Brenaven Kugamoorthy, a kinesiologist from UofT who has an interest in physical activity for individuals with congenital heart diseases, to give a 30 minute talk on recommendations for exercise programs, different modalities of exercise children and caregivers/parents can do together to meet their demands and capacities. This talk will be mostly targeted towards caregivers/parents...

Fontan camp for kids with CHD, virtual camp, heart defects

 

We are excited to annouce the 1st Pan-Canadian Virtual Fontan Heart Camp: November 26, 2022: 9 am - 3 pm (MT) with Virtual Heart Connection!

Organized in association with the Pediatric Cardiology team at the Stollery Children's Hospital, Edmonton, AB.

The goal is to connect children who have had a Fontan operation to others similar to them through this FREE, 1-day event via fun activities such as games, arts & crafts, cookie decorating, Fontan testimonies and answering any questions you may have about your heart. You will receive an activity package to do together on the day prior to the...

Illustration of Penelope

 

The Canadian Congenital Heart Alliance is thrilled to announce the launch of a children's book "Penelope goes for her heart checkup".

Follow Penelope - a young girl - as she travels to the hospital for her ‘heart checkup’ with her Heart Team in this beautifully illustrated book for children ages 5-8. 

To learn more and download the book visit https://www.cchaforlife.org/penelope-goes-her-heart-checkup

KIDS ACTIVITY ALERT!!!  To be a part of Penelope's journey, download the colouring page below. Colour Penelope and her Heart Team and take a pic of the completed colouring page, tag us...

Advocacy information for parents and adults with CHD

 

For individuals and parents of a child living with a congenital heart condition, self-advocacy skills are necessary to communicate with all their health care providers, manage their day to day activities and make effective use of community resources.

What is Self-Advocacy? Self-advocacy is when a person is able to speak up in order to communicate their needs. In medical settings, self-advocacy strategies are helpful to make sure you and/or your family are understood, that your needs are being met, and that you have understood the information and advice you've been given by your healthcare...

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Congenital Heart Surgeons' Society Data Center
The Congenital Heart Surgeons' Society Data Center takes pride in their research and it would not be possible without the annual participation of the patients and families enrolled in their studies. Please click on the banner to be part of their team and to join their community.

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