Canadian Congenital Heart Alliance

Education

heart defects, heart disease, charity, CHD, heart month, heart, congenital heart defect, congenital heart disease, birth defect, 1 in 100, chd awareness, chd advocacy

 

CCHA is partnering with 3D Heart Project.

Congratulations to Dr. Carolina Escudero and her 3D Heart project team for winning the $10,000 viewers choice prize from WCCHNs 2022 BoostUP competition!

CCHA is excited to annouce we have partnered with the 3D Heart Project, an innovative cardiac project whose vision is to improve understanding for children, adults and their families of their heart defect and diagnosis by creating an open and freely accessible educational resource using 3D models. Education and access to CHD resources for individuals and families and trainees is vital to being engaged...

Congenital Heart Disease journal ceases publication

 

IMPORTANT INFORMATION FROM DR.DOUG MOODIE (EDITOR-IN-CHIEF) ABOUT THE DISCONTINUATION OF THE JOURNAL “CONGENITAL HEART DISEASE”

Congenital Heart Disease journal ceases publication

Send your feedback and let Wiley Blackwell publications know that this Journal is vital to the CHD professional community. 

On Social Media: @WileyNews

CHIP is funded by the community. Your donations and sponsorships help your community stay informed and connected.
 

 

Stay home save lives COVID19

Image_by Grégory ROOSE from Pixabay(4983843_1280)

The World Health Organization officially declared COVID-19 a global pandemic on March 11, 2020 with Canada and provinces putting lockdowns in place shortly thereafter.  For 7 weeks now Canadians having been living through this COVID-19 pandemic.  We are all living with heightened emotions, living life day to day, not knowing what tomorrow or next week is going to look like, unable to make plans for the future.  We are all dealing with emotions such as fear and anxiety due to uncertainty and stress about jobs, school, financial wellbeing, health...

Annual Labatt Family Heart Centre Family Conference 2017

Saturday April 22, 2017 8:30am to 4pm

Peter Gilgan Centre for Research and Learning (PGCRL) at 686 Bay St, Toronto

This conference brings children, their families and health professionals together to share information and experiences about heart disease in children.

The goal is to enhance parent and family emotional well-being through knowledge exchange, experiential sharing and the development or informal support systems.

For more information: http://www.cchaforlife.org/labatt-family-heart-centre-family-conference

Getting Ready for Adult Cardiac Care - An Information Night for Teens and their Family

SickKids Hospital, Room 4132 - Cath Lab Media Room, 4th Floor, Elm Wing
Thursday April 27, 2017 - 7-9pm
(no charge)

PDF icon Download 2017 G2G Transition Education Day.pdf (46.21 KB)

For more information: www.cchaforlife.org/transition-night

Please register by calling the Cardiac Clinic before Friday April 21st, 2017.
Sandra 416-813-5849 or Dimi 416-813-7654 ext. 228861
Refreshments will be provided!

Getting Ready for Adult Cardiac Care - An Information Night for Teens and their Family

Have you wondered what it will be like receiving care for your heart at the Adult Clinic?
(also called the Toronto Congenital Cardiac Centre for Adults)

This is your chance to find out.

  • Find out about the Adult Clinic
  • Meet some of the Adult Clinic care providers
  • Tour the Adult Clinic
  • Learn about the experience of patients and families
  • who have already transferred
  • Get your questions answered

SickKids Hospital, Room 4132 - Cath Lab Media Room, 4th Floor, Elm Wing
Thursday April 27, 2017 - 7-9pm
(no charge...

Edmonton Heart to Heart: Congenital Heart Education Forum

 

Date: Saturday, April 22, 2017, 9:00am-3:30pm

Location: Shaw 3i Auditorium, Mazankowski Alberta Heart Institute

 

http://www.cchaforlife.org/edmonton-heart-heart-congenital-heart-educati...

Transitioning from pediatric to adult CHD care

Transition

Children pass many  milestones growing up, the first day of kindergarten, the liberty of becoming a licensed driver and -going-off-to-college or university, just to name a few. Parents give the necessary “talks” about responsibility, risk and behaviour. These transitions are thought of as rites of passage.

Prepping our youth for entry into adult health care should be no different than transitioning into college, university or into the workforce.  At some point, most individuals will assume responsibility for maintaining and managing their own health. There remains work to do to...

Mazankowski

 

Edmonton Heart to Heart: Congenital Heart Education Forum

 

Date: Saturday, April 22, 2017, 9:00am-3:30pm

Location: Shaw 3i Auditorium, Mazankowski Alberta Heart Institute

 

Download Edmonton Heart to heart 2017 flyer.pdf (367.78 KB)

 

Registration is FREE, lunch included. Space is limited, so register early!

Please RSVP to Bonda.Toppin@albertahealthservices.ca
or 780-407-6552

 

 

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Check out how congenital heart disease stacks up against better recognized diseases in Canada! So many affected and so little awareness and funding! Get involved with CCHA, donate, and spread the word about the growing population of of "survivors" so that we can get the care and support we need to live long, healthy lives!

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