For individuals and parents of a child living with a congenital heart condition, self-advocacy skills are necessary to communicate with all their health care providers, manage their day to day activities and make effective use of community resources.
What is Self-Advocacy? Self-advocacy is when a person is able to speak up in order to communicate their needs. In medical settings, self-advocacy strategies are helpful to make sure you and/or your family are understood, that your needs are being met, and that you have understood the information and advice you've been given by your healthcare...
The World Health Organization officially declared COVID-19 a global pandemic on March 11, 2020 with Canada and provinces putting lockdowns in place shortly thereafter. For 7 weeks now Canadians having been living through this COVID-19 pandemic. We are all living with heightened emotions, living life day to day, not knowing what tomorrow or next week is going to look like, unable to make plans for the future. We are all dealing with emotions such as fear and anxiety due to uncertainty and stress about jobs, school, financial wellbeing, health...
The purpose of these transition recommendations is to support families understand the stages of Transition and support discussions with your CHD healthcare team. Transition should be personalized for each individual, in accordance with their chronological age, developmental stage and abilities. Active engagement in the transition process is vital for teens and young adults and families to prepare for a healthy life as an adult with CHD
Introduction to Health: Age 2-7 years old
Goal - Understanding their body
Transition preparation begins when your child is a toddler; coach them to...
Today we celebrate 75 years since the first "blue baby" surgery by Alfred Blalock, with Helen Taussig and Vivien Thomas on November 29, 1944.
The child was 15-month-old, Eileen Saxon, the surgery was a success and she went home after 3 months. Unfortunately her cynotic episodes returned and 2 days before her 2nd birthday, she underwent another operation, she passed away 5 days later.
Now known as the BT or BTT shunt, the surgery was a success and really the start of #CHD surgery. We have come a long way since then, with an almost 95% survival rate into adulthood now.
The Congenital Heart Surgeons' Society Data Center takes pride in their research and it would not be possible without the annual participation of the patients and families enrolled in their studies. Please click on the banner to be part of their team and to join their community.